Before I dive into this blog post, I want to give you a quick follow up on my health issue. I came back from Mayo with a little uncertainty. However, after all my tests were done and the Mayo team consulted, it appears I was having a serious, rare side effect with one of my Lupus medications– Plaquenil. It has caused a eosinophilic disease (white blood cell) resulting in abdominal pain and inability to eat. I lost close to 20 pounds in 2 months. So, I discontinued it and after a few weeks, my eosinophils are back to normal. I’ve stopped loosing weight and I’m starting to eat a little more. Yeah!!!
So, now on to my blog post… Being a Celiac is more than a diet-controlled disease. When Celiac involves the family (like my 2 Celiac daughters), it’s a lifestyle. I’ve come across my share of Celiac peers and I really think we have our own culture. With kids, we have to address Celiac in schools and with friends. As a professional, I’m always thinking about what I can eat and drink at lunch meetings, after work happy hour meetings, conferences, business trips, etc. There is never a day when we don’t have “gluten-free” or Celiac in mind.
I love food and I love to cook. I’ve been toying with the idea of writing a book about living with Celiac. It would be a cookbook and a basic guide of how to manage Celiac Disease. It would also address the everyday issues of Celiac, such as working with schools and preparing lunches. But, I think the market is a little saturated with Celiac cookbooks. So, I was thinking of something different.
Last year, my husband and I spent 10 days in Germany and Austria. I love learning about other cultures! It made me start thinking about what Celiac life is like in other countries. Is there a Celiac “culture” that is common in different countries? I’m interested in your feedback on this theme for a book. If I pursue this, I’ll go to Kickstarter with a plan and seek funding to support this project.